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Good Morning it’s not easy living with a rare disease, some days are harder than other. Today the sun is shining bright here in New...

Good Morning It Nice And Sunny Here In New England. Temperatures On The Cold Side At 40 Degrees, With Beautiful Blue Skies. I’m Blessed To Have My Amyloid AL In Remission thanks to a great doctor and Angels watching over me. Just remember what ever type of rare disease you have and how hard it may be never give up.

Living with a rare disease can feel isolating. Many people may not understand what you are going through. However, there is a strong...

Caring for someone with a rare disease can be both rewarding and challenging. As a caregiver, you often find yourself navigating a...

In a world where information is at our fingertips, finding a community that understands your unique challenges can be life-changing. For...